Category Archives: Uncategorized

PDA Awareness – Surveys, Research, Campaigns and Media Interest

The Current Situation Faced by Many Parents and Families Recognition, understanding, assessment and diagnosis of PDA, for a variety of reasons, is still very much a post code lottery throughout the UK. Some local Health Trusts may have a policy … Continue reading

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PDA from the Perspectives of the Person with ASC/PDA

For many parents, trying to live harmoniously with a child with PDA can often seem an impossible task. One of the steepest and most important learning curves for me was to really try to view the world through my daughter’s … Continue reading

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Beginning to Build a Framework of Strategies for Children

Many moons ago, when my daughter was only about six to seven years of age, I discovered by chance, a condition that fitted her profile like a glove.  That profile was PDA and back then there was very little information … Continue reading

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Mental Health Issues

It is fairly well established that many individuals with ASD will experience various mental health issues such as depression, anxiety, low self-esteem, eating disorders, phobias, self-harm and obsessive behaviours E.G. skin picking, hair pulling & obsessive spending to name but a few, at … Continue reading

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Meltdowns

What is a Meltdown? A meltdown is when an individual looses all control and is at the pinnacle of fight or flight. All sense of reason and the ability to regulate their emotions may be completely lost. What is a … Continue reading

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What’s in a Demand

Individuals with PDA have an anxiety driven need to avoid the demands of everyday life. The avoidance of these demands and what the individual may constitute as being a demand can be far more wide reaching than parents may initially … Continue reading

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Social Anxiety and Isolation

Many children with PDA may become so anxious about social situations combined with the associated demand of going out that they become completely housebound.  This can be especially worrying for parents to deal with and may be deeply distressing and … Continue reading

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